Cambridge Haemophilia and Thrombophilia Centre official opening
Past and present Addenbrooke’s staff, patients, families and charities came together on Friday 21 June to celebrate the official opening of the Cambridge Haemophilia and Thrombophilia Centre.
Dr Trevor Baglin and William Wetherell.
The centre, which relocated next to the hospital concourse from the pathology block in January, provides a multidisciplinary, “one-stop” service for more than 550 patients and is one of only 10 designated comprehensive care centres for haemophilia and thrombophilia in the UK.
The event’s special guest was Dr William Wetherell, who suffers from severe haemophilia and has been a patient at Addenbrooke’s since he was six months old. He now works as a clinical fellow in intensive care medicine at the Royal London Hospital.
He said: “It’s been amazing to see how it has transformed under Trevor Baglin’s leadership, and I very much look forward to seeing what he does next.
“It’s a much more personalised service now, more flexible and tailored to the lives that people with haemophilia lead. I think it has given people with haemophilia their independence and more confidence to carry out sports activities and even travel, because they know where to seek help and advice. This service has changed my life over the past 20 years.”
Dr Baglin, divisional director of investigative sciences and consultant haematologist, told the assembled guests: “I think we all recognise that our patients can be inspirational, and the patients that we have come to know are no exception. They are inspirational in the face of adversity, and they are inspirational in the support they give to each other, but hopefully we can lessen the burden by delivering multidisciplinary care that addresses not only the primary problem but the impact of this condition on their wellbeing and lives.”
He said it had gone from strength to strength since the Department of Health designated it as a comprehensive care centre in 1994.
The centre aimed to fully integrate clinical care with research in order to improve practice, particularly in the specialty of thrombophilia. Under nurse consultant Caroline Baglin, staff at the centre had recruited more than 4000 patients to studies, published 100 articles and contributed to nine national guidelines.
Last week, it was announced that Addenbrooke’s experts had secured funding to develop a potentially ground-breaking anticoagulant drug (see link above right).
Dr David Perry, a consultant haematologist and expert in the genetics of haemophilia and rare blood disorders, said the event also coincided with a triennial external review, which had praised not only the clinical care but the “fantastic” new facilities. The new centre had been entirely funded by clinical trials, rather than NHS funds, and was a tribute to its dedicated team.